https://www.cfgetloud.ca/news daily 0.75 2024-11-20 https://www.cfgetloud.ca/news/a-mothers-fight-for-her-son-why-every-rare-life-deserves-a-chance-to-breathe monthly 0.5 2024-11-20 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/b1d8ec86-93e3-4865-a857-7d3223462915/Screen+Shot+2024-11-12+at+8.02.15+AM.png News - A Mother’s Fight for Her Son: Why Every Rare Life Deserves a Chance to Breathe This approach makes sense. CF patients live with a fragile balance of health, undergoing countless medical regimens, physiotherapy, and hospitalizations. They deserve the right to try any treatment that may help them, under the guidance of their doctors. Thank you, Alberta. https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/4c560c93-7c20-4b8f-a969-a920bc707018/LetOut_Vicky_website+.jpeg News - A Mother’s Fight for Her Son: Why Every Rare Life Deserves a Chance to Breathe - Make it stand out Photo of Vicky and her son, Sebastian. This is one of the many families being left behind by our government. https://www.cfgetloud.ca/news/the-federal-election-is-over-now-what monthly 0.5 2021-09-21 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1632235231124-MIG9NWRGBCJKULNN998D/Now+What+Election+44+%281%29.png News - The Federal Election is Over – Now What? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.cfgetloud.ca/news/thank-you-beth-vanstone monthly 0.5 2021-09-21 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1632130719936-QVXHP4Y5O4O9TC0S9LGC/Beth+Thank+You.png News - Thank you Beth Vanstone - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.cfgetloud.ca/news/cf-get-louds-response-to-cadths-draft-recommendations monthly 0.5 2021-08-17 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1629162259820-Q1CE0OHGIYE473SHF8CK/Copy+of+Copy+of+Purple+Blue+Graphic+Designer+Online+Seminar+Poster.png News - CF Get Loud’s Response to CADTH’s Draft Recommendations - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.cfgetloud.ca/news/open-call-for-input-and-feedback-to-cadth monthly 0.5 2021-07-22 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1626237140288-GJVGOBZT40EEA4A5I6YX/6A323C70-118E-4D57-AD35-28E0E3DA93C8.png News - Open Call for Feedback to CADTH - YOUR VOICE COUNTS CF patients and their families are key stakeholders in the review of Trikafta. Our lives depend on a positive review by CADTH. The draft review that was released on July 8th outlines unethical and limiting criteria for Trikafta. The draft demonstrates how misguided CADTH is on the nature of our progressive, all encompassing disease. At this time, we need YOUR voice to be heard. We need to be LOUDER than ever. If you have not yet reviewed the CADTH draft recommendations, please review our summary here. https://www.cfgetloud.ca/news/cadth-draft-review-received monthly 0.5 2021-07-14 https://www.cfgetloud.ca/news/nominate-a-cf-nurse monthly 0.5 2021-05-11 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1620736402389-NIHIKWBCCNRUHVG4QZ2A/unnamed-2.jpg News - Nominate a CF Nurse - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.cfgetloud.ca/news/art-with-heart-cf-get-loud-virtual-art-exhibition monthly 0.5 2021-04-06 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1617716344496-XA3M50FL2NQ5PLJB4UCV/An+Arabian+Peninsula+Sail_300dpi.jpg News - Art with Heart - A CF Get Loud Virtual Art Exhibition https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1617716345301-KCV90J16IYBFNN12OZ8Y/Zanj.jpeg News - Art with Heart - A CF Get Loud Virtual Art Exhibition https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1617716352938-50BCSK1P18ZTOUHD5MXE/Zanj_Artist+Shot_07.jpeg News - 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A CF Get Loud Virtual Art Exhibition https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1617716369197-BOONX7NPKMTMHVEN1V3P/Sui+Dynasty+Grand+Dragon+Boat_300dpi.jpg News - Art with Heart - A CF Get Loud Virtual Art Exhibition https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1617716378012-JV5UFLG1QCJFSXSGRY1R/Shrimping_Artist+Shot_02.jpeg News - Art with Heart - A CF Get Loud Virtual Art Exhibition https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1617716377458-L9TSIM65ALSOSB6NP7JT/Min+of+the+Desert_300dpi.jpg News - Art with Heart - A CF Get Loud Virtual Art Exhibition https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1617716378329-9M8N3W9YBW7OBHUVH3BJ/Medusa%E2%80%99s+Raft.jpeg News - Art with Heart - A CF Get Loud Virtual Art Exhibition https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1617716387306-7A1P7JLE7DAWKHR6RSTN/Life+of+Pi_Artist+Shot_02.jpeg News - Art with Heart - A CF Get Loud Virtual Art Exhibition https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1617716386004-Y6G9D582BABMDK2SI1TM/German+Navy+Surface+Ship+WWII_Artist+Shot_02.jpeg News - Art with Heart - A CF Get Loud Virtual Art Exhibition https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1617716395644-ZC3BMYJZ9JDPUKPISYTV/Galway+Hooker+Sailing+In+An+Irish+Sunset_Artist+Shot_10.jpeg News - Art with Heart - A CF Get Loud Virtual Art Exhibition https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1617716395706-932LVX90LOMYI7MAUAO5/Everglades_Artist+Shot_03.jpeg News - Art with Heart - A CF Get Loud Virtual Art Exhibition https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1617716407640-D4E65ZB199AOBI7YQY9B/Costa+Concordia.jpeg News - Art with Heart - A CF Get Loud Virtual Art Exhibition https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1617716403070-50NBHGVBWYXK2KFFSI89/Colin+Archer%27s+Tahitiana_Artist+Shot_02.jpeg News - Art with Heart - A CF Get Loud Virtual Art Exhibition https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1617716411948-OB3G8YWLZQ5A5Q1336JW/Cheng+Ho+Treasure+Boat_Artist+Shot_01.jpeg News - Art with Heart - A CF Get Loud Virtual Art Exhibition https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1617716414990-735HUMYHL4T5AXO7FQYR/Cheng+Ho+Treasure+Boat_300dpi.jpg News - Art with Heart - A CF Get Loud Virtual Art Exhibition https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1617716417557-LDHL6A396FQ6V657G2Q7/An+Arabian+Peninsula_Artist+Shot.jpeg News - Art with Heart - A CF Get Loud Virtual Art Exhibition https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1617663633877-ZALXZCFHDC7DGE8PB3S0/File_000.jpg News - Art with Heart - A CF Get Loud Virtual Art Exhibition https://www.cfgetloud.ca/news/get-loud-call-for-assistance-in-ontario monthly 0.5 2021-03-05 https://www.cfgetloud.ca/news/hunter-guindon-an-advocates-journey monthly 0.5 2021-03-01 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1614607703503-B4Z11MEYLYTK53ZZ02KF/Hunter1.jpeg News - Hunter Guindon: An Advocate’s Journey https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1614607648048-CODOSPCRUY92UNYVUJQ7/Hunter.jpeg News - Hunter Guindon: An Advocate’s Journey https://www.cfgetloud.ca/news/wegotloud-spotlight-on-elizabeth-may monthly 0.5 2021-03-03 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1614605826206-J8ZV69XOVF8TP7P8RUW6/emay.jpg News - #WEGOTLOUD Spotlight on Elizabeth May https://www.cfgetloud.ca/news/als-action-canada-we-stand-with-you monthly 0.5 2021-02-27 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1614437316320-MCKK9GY7WE1SKANA0LF9/ALSA_socialpromo.jpg News - ALS Action Canada - We Stand With YOU. https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1614455775307-7TTUD334AGL0CQ95NNZE/B9666E56-7E87-4B2F-84F3-6D4708BDA8A9.png News - ALS Action Canada - We Stand With YOU. https://www.cfgetloud.ca/news/all-party-emergency-access-to-trikafta-federal-caucus-writes-letter-to-federal-minister-of-health-patty-hadju monthly 0.5 2021-02-27 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1614435033331-B2XJG2R8QB0Q9THWJ8KG/Cystic+Fibrosis_AllPartyCaucus_Letter_Minister_Hajdu_Feb27_2021-1.jpg News - All-Party Federal Trikafta Caucus writes letter to Federal Minister of Health, Patty Hadju - Download your copy of the letter to Minister Hajdu https://www.cfgetloud.ca/news/get-loud-for-rare-disease-day-2021 monthly 0.5 2021-02-26 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1614296466529-3NBFUT10XA4X5Z21WEIK/IMG_2853.jpg News - Get Loud for Rare Disease Day 2021 - Sunday Feb 28th https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1614295449238-25AW5A1VKIA35SQCRY2O/CFGL_Showyourcolours.jpg News - Get Loud for Rare Disease Day 2021 - Sunday Feb 28th - SHOW YOUR SUPPORT + FILL THIS PAGE WITH COLOURFUL HANDPRINTS Download this background, fill it with colourful handprints in support of Rare Disease Dar and share it with everyone on social media. Be sure to tag us so that we can share it. https://www.cfgetloud.ca/news/wegotloud-spotlight-on-scott-reid monthly 0.5 2021-03-01 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1613508491582-4JVY3OWS49HB5QXUIA8A/scottreidyellow2.jpg News - #WEGOTLOUD Spotlight on Scott Reid https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1613521606403-VT5RC0F1UO7P0YH9YPFD/CACE7A0E-7323-4C1F-98EC-92F94B92C2E1.png News - #WEGOTLOUD Spotlight on Scott Reid https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1613507906883-E6OMV0XZZ2K2U0YY6PD3/scottreidfb.JPG News - #WEGOTLOUD Spotlight on Scott Reid https://www.cfgetloud.ca/news/cadth-submission monthly 0.5 2021-02-19 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1613510404168-DAN32SCAEUDN7GT09LGT/appendix.PNG News - CADTH Reimbursement Review - Patient Input https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1613510402496-2L0PTMW4RJRVYMSZDB85/CADTH+submission.PNG News - CADTH Reimbursement Review - Patient Input https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1613510403600-ES32V4SIDIYI4UWP6LAE/diseaseexperience.PNG News - CADTH Reimbursement Review - Patient Input https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1613510405509-851K8XPWQ9OAT6AU75RA/improve+outcomes.PNG News - CADTH Reimbursement Review - Patient Input https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1613509831921-F71TB3FEIMNDXS7VDQ2L/CADTH+submission.PNG News - CADTH Reimbursement Review - Patient Input https://www.cfgetloud.ca/news/ontario-all-party-meeting-access-to-trikafta monthly 0.5 2021-02-19 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1613756799781-HYJED4RM0C2EHN762M1X/ontariocaucus.jpg News - Ontario All-Party Meeting on Access to Trikafta https://www.cfgetloud.ca/news/wegotloud-spotlight-on-dane-lloyd monthly 0.5 2021-02-16 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1612913652644-MMAW139FFT01631BTK0U/1.png News - #WEGOTLOUD Spotlight on Dane Lloyd https://www.cfgetloud.ca/news/wegotloud-spotlight-on-martin-shields monthly 0.5 2021-02-09 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1612313679540-BJGY282LD58NXX9ZL46Q/3E5E2A8C-F426-41BF-A657-833E60470325.png News - #WEGOTLOUD Spotlight on Martin Shields https://www.cfgetloud.ca/news/wegotloud-spotlight-on-karla-bernard monthly 0.5 2021-01-26 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1611678664685-399SDY0UKDVA1ABSY2R2/karlabernard2.jpg News - #WEGOTLOUD Spotlight on Karla Bernard https://www.cfgetloud.ca/news/health-technology-assessment monthly 0.5 2021-01-27 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1611769089803-MO7HOFPG4OAZRYURZ21U/HTA+here.png News - Health Technology Assessment We are currently in the middle of the HTA process as part of the Drug Approval Process of Trikafta. This is part of the aligned review of Trikafta. This means that the manufacturer is seeking a Notice of Compliance (Health Canada regulatory approval) and coverage recommendations at the same time through the Health Technology Assessment process. https://www.cfgetloud.ca/news/wegotloud-spotlight-on-ted-falk monthly 0.5 2021-01-20 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1610551800475-99WEVBNIFL15G9T6EA3X/falknewsletter.jpg News - #WEGOTLOUD Spotlight on Ted Falk https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1610551129701-HMSWJJ3GURW4B1Q02QL6/tedfalkmeeting.JPG News - #WEGOTLOUD Spotlight on Ted Falk https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1611107918987-4HPXLZ2FDUSM9EO0305M/1.png News - #WEGOTLOUD Spotlight on Ted Falk https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1610551817392-RZ88CPWFM6RLN8AFBKXJ/falknewsletter1.jpg News - #WEGOTLOUD Spotlight on Ted Falk https://www.cfgetloud.ca/news/wegotloud-spotlight-on-jim-wilson monthly 0.5 2021-01-13 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1610464886297-V818OCNETC1J7XNPLUGV/jimwilsonmadi1.jpg News - #WEGOTLOUD Spotlight on Jim Wilson https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1610464858961-RYQUCNC0KM6MS9L30YMU/jimwilsonmadi.jpg News - #WEGOTLOUD Spotlight on Jim Wilson https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1609951694519-6NSSR1M2UJL6JM927ZW2/bethjimwilsonmadi.jpg News - #WEGOTLOUD Spotlight on Jim Wilson https://www.cfgetloud.ca/news/we-got-loud-spotlight-elected-officials-edition monthly 0.5 2021-01-12 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1610069610525-HJXPUJAESUD6PVB2P4HO/86A4832C-5AFD-41B8-92BA-BD3DF0826EB6.png News - #WEGOTLOUD Spotlight - Elected Officials Edition https://www.cfgetloud.ca/news/wegotloud-pmprb-guidelines-delayed-until-july-1st-2021 monthly 0.5 2021-01-08 https://www.cfgetloud.ca/news/hvs214xku1wx6gf9weaems2ppwl79q monthly 0.5 2021-01-08 https://www.cfgetloud.ca/news/letter-from-pcpa-to-jim-wilson-mpp-regarding-current-negotiations monthly 0.5 2021-01-08 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1608534163760-7G3FTQC5CCSQEKYM2DTM/jimwilsonletterdec1.jpg News - Letter from pCPA to Jim Wilson MPP regarding current negotiations https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1608534163761-6OX0HDHBG3YM7WK6FEHS/jimwilsonletterdec2.jpg News - Letter from pCPA to Jim Wilson MPP regarding current negotiations https://www.cfgetloud.ca/news/court-rules-pmprb-does-not-have-unlimited-jurisdiction monthly 0.5 2021-01-08 https://www.cfgetloud.ca/news/all-party-emergency-access-to-trikafta-caucus monthly 0.5 2021-01-08 https://www.cfgetloud.ca/news/sickboy-podcast-interviews-our-very-own-stephanie-stavros monthly 0.5 2021-01-18 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1610935719685-PRMC3FD54D7C40XYFMU4/A7576D7C-7C97-4000-864B-61162ACD668B.png News - Sickboy Podcast Interviews our very own, Stephanie Stavros https://www.cfgetloud.ca/news/back-to-school monthly 0.5 2021-01-07 https://www.cfgetloud.ca/news/r1p22aqnf6hpjrnuro03xq3jxp21fr monthly 0.5 2021-01-21 https://www.cfgetloud.ca/news/l3hq46t2bus2ctd1dz2o8upof5ptxn monthly 0.5 2021-01-07 https://www.cfgetloud.ca/news/y4oxf1kman14snvuupz5t1bligfgr0 monthly 0.5 2021-01-07 https://www.cfgetloud.ca/news/cf-get-loud-townhall monthly 0.5 2021-01-08 https://www.cfgetloud.ca/news/canada-dont-give-up-on-us monthly 0.5 2021-01-08 https://www.cfgetloud.ca/news/cf-families-get-loud-for-access-to-medicine-at-queens-park monthly 0.5 2021-01-06 https://www.cfgetloud.ca/news/after-getting-loud-the-first-cf-patient-in-canada-is-approved-for-compassionate-care-for-trikafta monthly 0.5 2021-01-06 https://www.cfgetloud.ca/news/tag/Rare+Disease+Day monthly 0.5 https://www.cfgetloud.ca/news/tag/JuniorAdvocates monthly 0.5 https://www.cfgetloud.ca/news/tag/FUNDRAISING monthly 0.5 https://www.cfgetloud.ca/news/tag/Gene+Modulators monthly 0.5 https://www.cfgetloud.ca/news/tag/Ultra+Rare+Lives monthly 0.5 https://www.cfgetloud.ca/news/tag/Trikafta monthly 0.5 https://www.cfgetloud.ca/news/tag/cystic+fibrosis monthly 0.5 https://www.cfgetloud.ca/news/tag/ART+FOR+HEART monthly 0.5 https://www.cfgetloud.ca/news/tag/Left+Out monthly 0.5 https://www.cfgetloud.ca/news/tag/Rare+Disease+Strategy monthly 0.5 https://www.cfgetloud.ca/news/tag/spotlight monthly 0.5 https://www.cfgetloud.ca/news/tag/elected+official monthly 0.5 https://www.cfgetloud.ca/news/tag/rare+disease+day monthly 0.5 https://www.cfgetloud.ca/home daily 1.0 2024-11-20 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1610063478956-0TVDLMBT42Q5VD0EE1V7/News.jpg Home - CF GET LOUD - The largest CF grassroots movement in Canadian history. Find out about our mission and how families from across Canada have joined together to GET LOUD. https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1595993482964-6P4ZYAN504WF35N0Q3PP/Aro%252BHa_0073.jpg Home - Take Action Are you passionate about helping CF patients gain access to life-saving medications? Are you a CF patient that is waiting for Trikafta? We are only as strong as our collective efforts. Let's amplify our message and grow the movement. We have fought this battle for too long and many have done it in isolation, without a patient-advocate community. It’s time to rally the troops and GET LOUD for CF. https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1608260211149-R5YTUDIG4ZR2KBL589N5/image.jpeg Home - “Your battle is our battle. We will fight together. Together, we are unstoppable.. ” — CF GET LOUD https://www.cfgetloud.ca/drug-approval-process daily 0.75 2021-01-08 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1608536222353-LORHH49C6CT77YGVDKL0/flow+chart The Drug Approval Process https://www.cfgetloud.ca/about-us daily 0.75 2021-08-16 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1608000527355-WAGT2L0ZGAQ8HNZHL0WM/Screen+Shot+2020-12-14+at+9.48.20+PM.png About Us https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1603203843768-IDAL997OT8ZAPM3NT9RP/Booklet.jpg About Us https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1607629028994-SVLUNSHL4VEPE8G23RS3/istock-472028599-1508292630.jpg About Us https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1611270652788-5M7DW2RY8E6TAZH3D5WK/WhatsApp%2BImage%2B2021-01-15%2Bat%2B12.34.32%2BPM.jpg About Us Mathew Van Camp Founder https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1611272257022-GZ8YKWIA86AJQ2VC1HDS/IMG_7891_Original.jpg About Us Stephanie Stavros Director, Founder https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1611270566097-1HTBGIOIX7E28VNFHX2R/WhatsApp%2BImage%2B2021-01-21%2Bat%2B5.34.32%2BPM.jpg About Us Jacob Jaramillo Director, Founder https://www.cfgetloud.ca/faq daily 0.75 2021-01-26 https://www.cfgetloud.ca/take-action daily 0.75 2024-11-20 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1625775034057-M31V1K7EI7184FW5M5RB/60EBF94B-3515-4F9B-90DB-303C28FB009A.PNG Take Action - CANADA: ONLY OUR CF DOCTORS SHOULD BE ABLE TO DECIDE WHAT MEDICINE WE NEED. Health Canada has approved Trikafta for a list of genetic mutations, but our Canadian population is a beautiful mosaic of backgrounds and ancestries, making every patient unique. The rarest among us deserve the same chance at life, the same opportunity to try. In Alberta, progress is happening. Recently, the provincial government changed its funding model for Trikafta, giving doctors the power to make treatment decisions based on their professional judgment and the specific needs of each patient. This change puts the decision-making where it belongs—in the hands of the experts who understand the nuances of CF and the potential of Trikafta. This approach makes sense. CF patients live with a fragile balance of health, undergoing countless medical regimens, physiotherapy, and hospitalizations. They deserve the right to try any treatment that may help them, under the guidance of their doctors. https://www.cfgetloud.ca/useful-links daily 0.75 2021-01-08 https://www.cfgetloud.ca/donate daily 0.75 2021-03-01 https://www.cfgetloud.ca/resourcess daily 0.75 2021-01-11 https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1610085058430-YUAZODQ22TWSTIYENEAJ/image-asset.jpeg Resources https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1610084095328-DIPXXS4G8T5YYC33R75U/image-asset.jpeg Resources https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1610085394210-O4MUK64G2QNLKVI9OH9F/oldFBcover.jpg Resources https://images.squarespace-cdn.com/content/v1/5f20e36e50bec52030410501/1610084567799-FAPEQZPDTDP2ZRER8XDZ/process.JPG Resources