All-Party Federal Trikafta Caucus writes letter to Federal Minister of Health, Patty Hadju

This Rare Disease Day, we are celebrating collaboration across rare disease communities & within our own CF community.

Together with CF Canada and CF Treament Society we formed an All-Party Emergency Access to Trikafta Federal Caucus that resulted in an open letter to our Federal Minister of Health, Patty Hadju, signed by members of parliament from every party.

The letter is signed by 44 Members of Parliament and is asking Minister Hadju to support the swift approval for Trikafta for the broadest indication possible. We are asking Minister Hadju to influence efficient and fast negotiations to get Trikafta into the hands of CF patients as soon as possible.

Thank you to everyone that was involved in this collaborative effort. We are louder than ever! 

Download your copy of the letter to Minister Hajdu

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Get Loud for Rare Disease Day 2021 - Sunday Feb 28th