Take Action
We need your help to ensure that Trikafta gets to every CF patient that is waiting. We need you to GET LOUD with us.
CANADA:
ONLY OUR CF DOCTORS SHOULD BE ABLE TO DECIDE WHAT MEDICINE WE NEED.
The Health Technology Assessment (CADTH) evaluates Health Canada approved medicine and provides recommendations on reimbursement. On July 8th, CADTH released their draft recommendations for CF patients that need to access Trikafta. They have placed restrictive criteria, therefore limiting access to the biggest breakthrough in CF History: Trikafta.
It’s YOUR TURN to voice your opinion on CADTH’s recommendations.
EVERYONE THAT CAN BENEFIT FROM THIS MEDICATION SHOULD BE ABLE TO!
Provincial officials, be our champions
We need to let our elected officials know what an important stage we are at. While we wait for Health Canada’s review and Health Technology Assessment, it is critical that our provincial governments understand the urgency of adding Trikafta and other modulators to the provincial formulary as soon as possible!
Share this simplified one-pager to your MLA/MPP today.
CF patients, we need CADTH & INESSS to hear YOUR voice. YOUR Story. These are the agencies that will determine the VALUE of Trikafta in your life.
Thanks to your tireless efforts in getting loud for Canadians with CF, we are currently in an aligned review process for Trikafta. This means that the manufacturer will look to seek a Notice of Compliance (Health Canada approval) and coverage recommendations at the same time through the Health Technology Assessment process. (Please see The Drug Approval Process to familiarize yourself with where we are in the fight.)
They will be reviewing the safety and efficacy of Trikafta at the same time as giving it a rating that will help the provinces determine how/if they will fund the medicine. This process can take a MAXIMUM of 180 days. By our calculations, we should be expected a review by the end of June, 2021. At this time, our Provinces will decide to what degree they will fund this life-saving medicine.
Read CF Get Loud’s CADTH Submission
To learn more about Health Technology Assessments, check out our News section: Health Technology Assessment
We are stronger together
GET LOUD on Social
Social media is a POWERFUL tool for advocacy. It can be your megaphone to help you rally the troops.
Share your story and your connection to the cause. Your voice is critical to the success of this movement.
Spread awareness by sharing our advocacy updates.
Be sure to tag your elected officials and get your message heard.
Get Political
Even if you have never considered yourself a ‘political person’, NOW is the time to get involved. You don’t need to feel overwhelmed or feel like you need to know all of the facts.
Arrange a meeting with your elected representative. At the very core of their oath is to serve their constituents, and local pressure can really push them to act.
You have lived it and seen first hand what CF looks like. Paint a picture for them, tell your story, get personal and don't be afraid to show emotion. We know that your story will appeal to their humanity. We will support you with additional resources.
For Federal Support: Reach out to your member of parliament
Look up your MP
For Provincial Support: Reach out to your provincial representative
Look up your MLA/MPP
Get your network involved
Think BIG. Who do you know in your personal network that could help elevate the message of CF Get Loud.
The team is always looking for contacts in media.
Tag it
Get your message to the people that need to hear it
Twitter Tags
@cfgetloud
@CdnHealth
@justintrudeau
@pattyhajdu
@erinotoole
@thejagmeetsingh
@ctvnews
@globalnews
@cbcnews
@fordnation
@jkenney
@PremierScottMoe
@johnhorgan4bc
@francoislegault
@StephenMcNeil
@dennyking
Hashtags
#CFGetLoud
#CFCantWait
#TrikaftaNow
#CysticFibrosis
#cdnpoli
#cdnhealth
Follow our journey.
Join the movement. Help save lives. #CFGETLOUD
