CF Get Loud’s Response to CADTH’s Draft Recommendations

We put out an open call for feedback on CADTH’s draft recommendations and you got LOUD. Thank you for being a critical voice in our submission.

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We heard from families across Canada about the draft recommendations and we included them in our community submission to CADTH.

On Wednesday, August 16th CADTH is holding an expert committee meeting to consider the response from CF Get Loud, CF Canada and CF Treatment Society and our CF clinicians.

The second half of our submission includes voices from CF families across Canada. We appreciate every family that contributed. We will keep pushing until have inclusive criteria for Trikafta. We will keep pushing until we get this RIGHT.

CF GET LOUD’S SUBMISSION

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Thank you Beth Vanstone

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Open Call for Feedback to CADTH